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Showing content with the highest reputation on 03/25/2020 in all areas

  1. The modern, “aggressive” infusion treatments are pretty impressive for a lot of people. That’s what i’m Hoping to start in the next few weeks. I hate IVs and pass out frequently with blood work, etc. I have 5 IVs in 8 days last week. I chose this treatment plan, in part, because infusions are twice a year. its not cheap, but my girlfriend has already insisted that we not even consider the cost, when quality of life is at stake. Turns out that i chose a pretty good insurance plan. Total out of pocket for me after 10(?) appointments, including an ER visit, CT scan, and MRI is stil well under $300. Obviously the drugs could balloon that to my out of pocket max REAL quick, but even that’s totally acceptable to stay active. I have 5 kids who think i’m Invincible. Planning to maintain that illusion for as long as possible. 💪🏻
    3 points
  2. 150 miles of Social Distancing today after work.
    3 points
  3. Got the beast out of storage today, rode a few hours and put on the rear seat cowl I bought back in december. Forgot what an absolute monster this bike is...
    3 points
  4. In the office today and forgot the following items: ID Badge, Lunch, Snacks. Remembered: To disinfect my door knobs and locks.
    3 points
  5. I’m really optimistic right now. Physical activity is suddenly much harder, but if this is the most i ever recover, i’ll Survive. Confident that i’m Too stubborn to be very limited. Glad to have been diagnosed so quickly. In hindsight, i have likely been having symptoms for almost 2 years, but with only one pretty minor relaps in September 2018, when they thought i had Bell’s palsy.
    2 points
  6. Best description I have found of what we are trying to do.
    2 points
  7. Wow.. your approach to this entire ordeal is incredibly brave and humble. You have all of my respect (if that means anything?). Attitude and perspective make all the difference. You are one seriously hardcore mother fucker, Chris.
    1 point
  8. None. They only had 16k on them. I have pushed belts to 24k miles, before. I just want it done so I can still leave it for sale while I ride it this summer. I was going to have the Duc shop do the service, but this virus has me home for some time. I am not sure I have the same skillset as the dealership, though. I only install one gasket on my drainplug. That must be why they charge $1300 for this service. Extra attention to detail...
    1 point
  9. Sorry to hear. A friend of mine said the swank diet saved him and has helped him manage his MS. He was at the point of needing a wheelchair when he started the diet. He was also in his 50s when it all started and is still working in machining. http://www.swankmsdiet.org/the-diet
    1 point
  10. Sorry to hear this, but it is very manageable these days. You are going to be on man.
    1 point
  11. Sorry to hear that. That's a very quick diagnosis of MS. Sometimes it can take years to identify and diagnose. So many auto immune diseases, lupus, ms, mg, etc all have very similar symptoms. I've been going through it with my GF for years. Probably doesn't seem like it....but if you do have MS it's better to know sooner than later and get moving on a treatment plan. Having MS 20 years ago was much different than today. Treatment, mitigation, and prognosis have come a very long way. It can be managed so much better with way less impact. Tip - If you are still dealing with the Vertigo, try a CBD vape. My GF dealt with Vertigo for months, sometimes for 2-3-4 hours without a break. The Vertigo meds didn't do a damn thing, but CBD or marijuana would stop the Vertigo in seconds...literally seconds.
    1 point
  12. I am very glad that you have the support of these people. As you say, it's been a big shock--I certainly get that. I know a few people who have MS, and they have found a way to manage it.
    1 point
  13. I don't know any of my passwords.
    1 point
  14. I've just been eating ice cream non stop. It'll be ok.
    1 point
  15. Just ride your bike and play dumb. The document listed transportation to "outdoor activity". I will be riding my motorcycle.
    1 point
  16. Don't matter of it works or helps anyone really. There is no reason for it to be illegal. I believe it helps people just saying that is irrelevant. We, allegedly, live in a country where you can do whatever you want as long as there isn't harm in doing so.
    1 point
  17. Corona isn't Trump's fault. Ebola wasn't Obama's. SARS wasn't Bush's and only a handful of cases of herpes were Clinton's
    1 point
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